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Health Data Leviathan
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Statewide Health Information Network for New York (SHIN-NY) to Improve Public Transparency with New Website
NYeC, the organization charged with overseeing New York State's health information exchange, the SHIN-NY, is taking steps to increase transparency and…
Jun 17
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Aimee
2
[Updated] The Nonprofit That Manages How New Yorkers’ Medical Records Are Shared Isn't Meeting Public Transparency Requirements
NYeC, the organization charged with overseeing New York State's health information exchange, the SHIN-NY, hasn't been meeting its very minimal…
Jun 11
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Aimee
4
2
No, Dr. Oz, Our Medical Records Don't Belong to Us. That Matters More Than Ever Now.
There is no law that gives us property rights to our health records, which are on the verge of becoming comprehensive catalogs of information on every…
May 26
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Aimee
8
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3
The Firsthand Report ⌗6
In this issue: Medicare-approved AI apps mix medical records and wearable data for personalized advice, Arpa-H biosensor project, final RLC hearing…
Apr 14
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Aimee
4
5
2
The Firsthand Report ⌗5
In this issue: Digital ID rollout in health sector accelerates as Medicare launches digital identity verification, video reporting from NYC "No Kings…
Apr 2
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Aimee
3
2
Hochul Vetoes New York Health Information Privacy Act
NYHIPA promised the strongest consumer health data protections in the nation, but critics called it unworkable. Now only a two-thirds majority vote by…
Dec 20, 2025
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Aimee
4
1
2
Trump, RFK Jr. and Dr. Oz Are Talking about Making Health Technology Great Again. The Devil Is in the Details.
On July 30, the White House made an announcement about a major step forward for the internet of health information. Watch it with me.
Aug 3, 2025
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Aimee
4
2
4
1:51:07
RFK Jr. Wants Wearables for Every American. Color Me Unsurprised.
Accelerating the completion of America's health data infrastructure has always been the HHS Secretary's core strategy to "Make America Health Again."
Jun 26, 2025
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Aimee
10
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5
What Do You Want from the "Health Technology Ecosystem"? The Government Wants to Know.
This is your chance to let HHS know what you want from health apps and devices, what you think about digital IDs, and how you want to manage your…
Jun 10, 2025
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Aimee
16
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"Individuals Should Have Control Over Their Own Data" A Conversation with Imagineeer Founder and Former HHS Chief Information Officer Jose…
In our wide-ranging conversation, the tech expert talks about innovations that could give us more control over our health data, what happened behind the…
Jun 4, 2025
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Aimee
7
4
1:32:11
New York's Health Information Privacy Act Promises the Strongest Consumer Health Data Protections in the Nation. Will They Make It to the…
The NYHIPA bill passed in January outdoes similar state legislation with its breadth and stringent requirements, but its final form will depend on the…
Apr 24, 2025
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Aimee
1
2
1:25:46
A P4P HEDIS Measure of Prevention: Will MAHA Leaders Bring Transparency to Value-Based Health Care Payment?
Do doctors really get bonuses for vaccinations or other medical services? I take a look under the hood of the health care payment system that everyone…
Mar 26, 2025
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Aimee
2
1
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48:15
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